2018-02-18 22:12:42

@Flakkers: 99% of people are decent. Had my own crowbar moment, though in my case it was a knife wielding tough guy in, yes, Boston of all places. I went to the south side, which in retrospect wasn't smart....but hey, hearing an old Catholic lady escorting me to a bus stop and helping me stay unstabbed was amusing. Then hearing her turn right around and scold the guy with the knife was hilariusly awesome, the fact the bus driver just stayed there and started yelling at the kid made it more awesome too

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2018-02-18 22:32:51

I would like get back sight,  you know why
blindness making trouble in my daily life,  in my work place people teases
so what you can say,
this is  my event right, i don't want to tell here,  but you guys a rock community
the blindness caused
when i lost sight,  family left,  and nothing staying long time
my fiance joined them together, I was 20 year old something.
6 year passed,  they are not asking,  what I am doing,  maybe I need something,
still investigating,  asking what is causing to they leave me?
I would be more happy If sight comes back,  but I know that damn won't happen anytime or soon
just everyone can blame me here,  but do not
problems makes me nervous correct
I am waiting maybe they will ask me one day what I am doing,  but this won't happen i know
they thinks themselves,  not me
in my work place, people said first,  wait the your life when ends,  you will be good,  or kill yourself quick
they are not blind,  that's i know why they doesn't liking us
what's our fault! we did not create destiny
that's why everday is same,  boring, nothing news happens, same thing
people teases,  nothing changes
do not talk with anyone in your wwork place,  only your boss can talk
just tired of their teasing
stay quiet one day maybe this will ends,  still nothing about family or people
I met alot evil people in life
best regards

2018-02-18 23:07:56

@23 I do see your point.
I lost the sight when I was 3 years old.
I know that  making the things withouth sighted help, driving a car, etc would be cool.
But I can't stand the fact that all the things that I built in my life with so much effort, will vanish once I take the sight back.
I think it doesn't matter if you're blind or not, if you want an house, work hard and go get one. If you want to learn how to cook go learn it, you'll need to fix some issues because you're blind, but at the end when you'll manage to cook what you want  you'll be satisfied.
Only because I'm blind it doesn't mean that I can't do what sighted people do.
Again I can appear stupid, but I really thought on this for a long time, and I was curious to know what people were thinking.
I have blind friends who actually work and have their home and who actually is able to cook.
This proves that even if you're blind you can still do things if you work hard on it.
I'm not saying that getting the sight back is not good, but I don't think that I would drop away all  the things I built in my life like that.

Paul

2018-02-18 23:24:00 (edited by afrim 2018-02-18 23:24:49)

@Enes, I am thinking of going to Germany to pursue the master studies, as I heard the support is decent for blind and visually impaired people. We'll have to see how the situation goes in the next months, but one thing is sure: I will not be able to follow master studies abroad unless a university grants me a scholarship. I can't really afford fees which go up to 10,000 euros per year for a non EU-student; it's impossible!

2018-02-18 23:50:24 (edited by braille0109 2018-02-19 00:01:07)

first things first, thanks all for a very interesting, perhaps the one of the most interesting topics we've had in a long while. posts 8 and 10, well written. crashmaster, think post 22, I'll be straight up honest, your post made me somewhat emotional. you have thought so much about it, and you've explained it well, most of which that I could relate to... once again, thanks for a great read. now on to a couple of things. first, if anyone thinks that having light perception allows you to do more, that's partially true. sure, you see the sun. sure, you see things. but it won't make you any more or less independent. as for sleeping difficulties, as I say, I have full light perception, and I can't, no matter how hard I try, sleep during the day. I've no ideas what it is related to, but it is what it is. post 28, there's a difference between being able to do things, and no sight stopping you. sure, maintaining a house is possible. sure, cooking is possible. sure, raising kids is possible. going into a shop without an assistant, somewhere where you haven't been before, and you're all alone... going to a country where the traffic works differently... so say you came from, I don't know, will say France to the UK. over here, we have left hand side drive. over there, we have right hand side. or is it the other way round? either ways, the fact is, crossing a British road, at first, may seem taunting. maybe it is. honestly, my mobility skills are horrible, and I'll get to that in a bit. so while things can be done, there are some things that you will just never be able to do. someone also raised the inability to use braille or speech. just because we gain sight, there's nothing to say that we can no longer use braille and speech.  as for things like RNIB, humanWare, etc, etc, total rip off. glad I'm not the only one, who feels like these companies are pushing you their one and only method. the sad thing is, I even know some blind people, who think that their method is the one and only. and you know what? it's sad, it's sad that they claim that you're this, you're that, yet they're the ones who are close minded. there's something else that hasn't really been mentioned, and so I want to raise it here. mobility. while I don't really want to go into my private life, long story short, I have not, till the age of 10, even seen, let alone using a cane. at the age of 10, when moving over to the UK, I was more or less forced to use it. that discouraged me so badly, I have not, for 2 years, again, used a cane. the fact that my mobility instructor was crappy didn't help the fact at all. she took me in the shop at the age of 16, gave me a carrot, and asked me what it was. no one, unless they went through it as well, will ever understand, how embarrassing that was. giving me a carrot, at the age of 16. long story short, I have lost my self confidence  that I once had. I lost hope of proper mobility, partially due to that instructor. here I am, at the age of 18, with more or less non-existent mobility skills. and no one, ever understood how I felt about it. the older I am, the worse this will be. with that said, I am fully independent as far as looking after  myself goes, as long as it doesn't involve busy streets. and honestly, I don't expect anyone to understand me. and no, it's not as easy as you just gotta move on and deal with it. unless someone has experiences with horrible mobility instructors, they will see it differently. once again, thanks for some interesting stories.

2018-02-19 00:00:37

...did we have the same mobility instructor I wonder? Seriously, I managed too nearly castrate myself several times with the long cane, damn thing got caught under my legs the whole time. Also carrots? No, no, Try being given a can of baked beans. Then try having a supermarket assistant acuse you of stealing it. No joke. Gotta love mobility bullshit.....but to be honest I do agree, advocacy groups are a rip off and a waste of time IMHO...

Fun fact, a now retired social worker told me, flat out, not to buy anything from the RNIB catalog, since it was overpriced and all that fun stuff.

Since you moved to the UK, were you forced to learn goalball or was that just me? I was, and oh look, a demeaning sport, or at least taught in a demeaning way, and I don't know any kids who are legally blind with sight who willingly want to play goalball...

Fun fact bout me: I'm a horse guy, I did barrel racing, I learned show jumping and freaked my instructor out. I also broke the RDA (riding for the Disabled) system by being too good for it. So, I got trained by a regular instructor and helped around the stable, which worked out well for me. Gimme a horse and somewhere to ride, I'm good thank ya.

Oh and also, speaking of demeaning stuff, being forced to learn braille, I dug my heels in and refused. I'm more at home on a computer thanks...

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2018-02-19 00:00:38 (edited by pauliyobo 2018-02-19 00:03:39)

@30, yeah, you have valid points.
But still personally, by my own I don't think I would jump back in to sight.
When I was 3 years old, I was been told that I couldn't never play football, because I am blind. Yet, I play in a blind football team, I've made the european championships and I'm considered one of the best players in my country.
It depends in what people past in their lifes that makes you say if you would take the sight or not.
I obviously think that if I could see I could do pretty good things.
But who says that If I can see my life would be better than it is now?
I've never had contact with those blind companies, or I've never made a blind school.
I always grew up with sighted people around me.
I found verry nice persons, like I found really ass holes.
But still, I wouldn't drop away what I have now for the sight. Not after the effort and the sofference I put in to it.

Paul

2018-02-19 00:09:29

I'm still on the fence about would I want sight back....

On the one hand, I would. On he other hand...I still wouldn't. I would so I could do more stuff, get back to horse riding, read books etcetra, on the other hand I wouldn't, at least until the procedure and the aftermath of said procedures are foolproof and I know I can deal with it.@Poly: You're seriously lucky, at least in the UK and US the blind services are extremely, extremely pushy and closed minded frankly, it's bullshit.

Instead of you playing football...and seen this happen they'd pull you off your team and put you on the goalball team, and when you asked why they'd say oh, you're blind, you don't play football....which is frankly bullshit but that's certain blind social services for you.

Amusingly enough

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2018-02-19 00:11:48

oh yes, goalball. I was the one with the least amount of sight in the team, MM. then they realised I couldn't throw straight. then I realised I wasn't a sporty guy, so I quit that thing. as for braille, personally, I still use it, especially for input. I still have braille specific devices, in fact, I completed secondary school, and college, least my first year, with a braillenote apex. and fuck it, I was happy. I crashed their visual displays, connected the apex to my phone, and there we were, bypassed all school restrictions, no one knowing any shit about me doing it. as for 32, I've always been around sighted as well. I know no blind that are near by, have no direct connection with them. but I could never fit the sighted. no clues if I really fit the blind, but honestly, I don't think so. as for adapting, I haven't adapted to be blind. I would have to adapt to sight, and I would do it. I really would. while I'm not depressed for having no sight, this is never what I was after. oh, and shall I mention if not for my specific LSA/VI worker who I had at the time, I probs wouldn't have past college or secondary? my secondary didn't want to give me both a reader and a writer for math, knowing that the UEB braille transition and learning contracted caused me to not fully know the math code, and knowing that we quit using braillers back in year 9. if not for the VI I had, I would have most likely never past. she was the same one who warned my college that the course is not accessible, so I either need to switch courses, or they need to be flexible. while I tried explaining how much they've done, I don't think it quite hit them. even up to this day, I have a few direct VI connections, and I still help out around my county. as for your mobility instructor,, post 31, feel free to PM me, and we can speak about our areas privately. or you can just add me on skype, with this same user ID.

2018-02-19 00:25:35

I'm noticing that a vast number of the people who would say yes have had to put up with super crappy people, and/or crappy teachers who arguably can't teach (the people who describe bad teachers come across as generally competent, so, yeah, I'm blaming the teachers).

Not sure what to do with these observations, but it's been pretty conspicuous while reading this thread.

看過來!
"If you want utopia but reality gives you Lovecraft, you don't give up, you carve your utopia out of the corpses of dead gods."
MaxAngor wrote:
    George... Don't do that.

2018-02-19 00:41:11

@JaceK, yours sounds like a genuinely dangerous incident, mine was just a dickhead kid acting tough and failing. It was like being mawled by a kitten.
The only really threatening thing that has happened to me so far didn't actually involve any threat at all, it was just disturbing. I was walking down a footpath late at night and I heard someone ahead of me, so I slowed down to let them pass so I wouldn't hit them with my cane, but they stopped. When I started walking again, they started walking along side me. I stopped and they stopped. I said what do you want, and he said nothing, just stood there right in front of me. I could feel his presence he was that close. I reached out with my cane and touched him to make sure there was definitely someone there and I wasn't going mad. I asked him what he was doing, and he still said nothing. I thought I'm not moving til you make your intentions known, so we both just stood there for a moment. Then he walked around back of me and I spun around thinking you're not going behind me. He walked to the other side of the path and stopped again. I waited a moment longer, then set off. I think he started walking along behind me, but I'm not sure. I didn't feel threatened while all this was happening, but once I started walking again, I couldn't wait to get off the footpath and back to the proper streets. This strange experience did affect my state of mind for a while when walking home at night. I had to force myself to use that footpath after dark even though my family told me not to. I just didn't want him to have that power over me, but that little wordless incident was more threatening than the boy with the crowbar.

2018-02-19 00:48:14

Okay that's to my mind more creepy than somebody out and out threatening you though....

Also yes at least here had some really crappy VI staf and some brilliant ones that had their hands tied by the system honestly....which sucks.

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2018-02-19 00:59:51

@flackers and post 36,
If it'd been me in your shoes, I'd probably have launched an all out asault once the guy started trying to walk behind me for a myriad of reasons, not least of which is the fact that, blind or not, I'd never let anyone come up behind me after deliberately ignoring me face to face.  Woooo, I'm glad I've not been in your situation though!

When life gives you oranges, demand lemons since everyone else is obviously getting them.

2018-02-19 01:04:33 (edited by flackers 2018-02-19 01:25:06)

On the subject of people who work with the blind being pretty dreadful, I II have had so much experience of that kind that I developed a half-baked theory about what might be behind it. Have you heard of the Stanford Prison Experiment? Essentially they took a group of ordinary people, split them in two, made one set prisoners and the other guards. The odd thing was that even though they were all perfectly decent people at the start, the ones who had the role of guards started to behave sadistically toward the ones they had at their mercy. The idea being that when people have someone at a disadvantage, it brings out the worst in them. I think this might be happening with people who spend a lot of time working with the disabled. I have defintley witnessed what I would call sadistic behaviour from sighted people who work with the blind. Little humiliations and power trips going on. The trouble is if you voice these concerns, you can end up sounding bitter and paranoid, but I'm convinced it really goes on in prisons, care homes, and anywhere one group has another at a disadvantage.

2018-02-19 01:11:11

Ever been to an American high school? Like that, but worse, yeah.
Public school, I should say. Private school grads seem confused and perplexed when HS is casually referred to as prison disguised as daycare disguised as education.

看過來!
"If you want utopia but reality gives you Lovecraft, you don't give up, you carve your utopia out of the corpses of dead gods."
MaxAngor wrote:
    George... Don't do that.

2018-02-19 02:16:42

I was thinking for a moment you were referring to the Milgram experiment Flakkers, aka  the shock somebody i you're told to one....but no, a better or at least as good analogy or experiment would be the monster study. Here: https://en.wikipedia.org/wiki/Monster_Study

So how's that relevant? Well, think how blind services treat blind people and those who work with disabled people are known to treat said disabled people....yeah.

Also on the point of the prison experiment....I'll point to the Third Wave experiment and again, advocacy groups

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2018-02-19 04:00:31 (edited by flackers 2018-02-19 04:08:57)

That monster study was pretty disgraceful. The fact they chose orphans means they knew they were going to damage those kids, so best there'd be no parents to make a fuss. It reminded me of the Oliver Sacks book The Man who Mistook his Wife for a Hat. I remember being a bit outraged at the way he treated some of his patients like they were objects that were there for him to do what he wanted with. They hadn't gone to him for treatment, he'd acquired them like specimens. For instance, there was a pair of idiot savant twins who were brilliant at mathematics, but couldn't look after themselves. Because they played math games with each other all day, he decided to split them up to see if they improved in terms of normal functionality. What gave him the right to prevent two twins from seeing each other against their will. Because they couldn't defend themselves, and there was no one to complain on their behalf, he acted like they were his property. There was another guy who he took from a care home or something to basically experiment on, again because he had no family to fight his corner. And yet the man who inspired the book's title, because he was of a certain class, and had a wife and family, was allowed to carry on being the way he was, unfucked with by Oliver Sacks. And ironically he was the one who did seek out treatment.

2018-02-19 05:22:15

I honestly don't think i would. I've been blind my whole life, its all i've ever known. My life's pretty great. Sure its hard at times, but that's life for everyone no matter what you are. I don't feel any different than anyone else either, so why does it matter if my eyes don't work? I mean yeah there's driving, but well... I've already done that a few times so its not like i'm missing out on much.

I am the blind jedi, I use the force to see. I am the only blind jedi.

2018-02-19 06:07:21

hi,
Kae, you also seem to  be socializing blindness,  telling me that it is because of crappy people or teachers. Well for one thing, which I really hate about blindness, it forces you to interact more with people,  and draws attention. Sometimes, I just want to turn invisible and not interact with people on this level. So to be clear, the problems I face, are! related to blindness, and not to something in society.
Also, paul, you stated that it would be too much efort to throw away everyhting and relearn. However, keep in mind that for everything worthwhile in life, you need to work hard, and put alot of efrot.  Why should this be any different?
And braille, not being to sleep in the day is a true blessing. It clearly shows you don't have non-24. When you have non-24, your body clock runs freely, and you have an ever moving sleep schedule.

A learning experience is one of those things that say, "You know that thing you just did? Don't do that."

2018-02-19 06:43:08

It does force you to ask for directions more often, yeah. I suppose that seems less important to me just because it seems like a subset of the world being hostile to introversion more than anything.
There's this old joke about a husband and wife getting lost on a journey,. It always seems to be summed up as the wife complaining that they wouldn't be in that situation if the husband had just stopped and asked for directions earlier (apparently all the husbands in these things do all the driving...).
Point being, sighted people do a lot of asking for directions, and less than they probably should. I don't know if this trope existed prior to the spread of automobiles. It seems like everyone in stories prior to the 20th century are always asking for directions.
IMO, I'd rather take the invisibility. Being able to go where I want without random encounter would be preferable to having to stare at the ground to avoid it.
The 21st century seems to just hate introverts, somewhy. Sight might give you a means to better fight this. It might not. It depends on your circumstances. I'm more of the opinion that the answer is a magically perfect community of people who are actually not unbearably stressful, but since that isn't going to happen, I'll settle for the invisibility cloak.

看過來!
"If you want utopia but reality gives you Lovecraft, you don't give up, you carve your utopia out of the corpses of dead gods."
MaxAngor wrote:
    George... Don't do that.

2018-02-19 07:01:20

@44,
Yes you're right, for making things in life you'll always need hard work.
But then, why should you drop away all your hard work that you've done in the past?
Who says that once you'll be sighted you'll actually fill better?

Paul

2018-02-19 07:10:14

you won't feel better, but you will likely be more independant, and be able to do alot of things that you couldn't do, or which you did very slowly in the past. That is worth it to me. So, now there are courses and training for people who get hearing restored, and people who are newly blind. After treatments become available, there will more than likely be training for those newly sighted.

A learning experience is one of those things that say, "You know that thing you just did? Don't do that."

2018-02-19 07:22:16

Mmm, interesting topic indeed.

For me, 50% yes, and 50% no. Because when you get your sight back, learning things from scratch is difficult and it's a waste of time, too. specially when you become n adult like myself, learning from school almost graduated, and almost get a work, and suddenly, someone comes up to me and say, "Hey, there is something bla bla bla that can get your sight back." I would do it, but just give me 30 - 40% eyesight is enough for my needs.

Sorry for my English.

2018-02-19 07:32:47

I kinda think, if I woke up tomorrow with perfect vision, and some kinda miraculous brain implants to skip the adjustment part, I'd try to get those inaccessible game development tools and try to start making things. And maybe work on print-reading speed. I don't see anything else changing.
(Ah, "inaccessible" modifies "tools", not "game". English and its legal ambiguous word-order...)
Well, the potential reduction in non24 would be nice, also.

看過來!
"If you want utopia but reality gives you Lovecraft, you don't give up, you carve your utopia out of the corpses of dead gods."
MaxAngor wrote:
    George... Don't do that.

2018-02-19 07:44:19

This is a very interesting topic. Where to begin?

First of all, can I just point out that the 70% statistic seems to be thrown around for all things blindness related? I've heard it for years pertaining to employment rates, now I'm hearing it about those who suffer from non-24. is that a coincidence? I'm pretty sure I've heard 70% in relation to something else to do with blindness as well, although it might have been worldwide unemployment rates, and then unemployment rates within the US. Can that really be a coincidence?

Secondly, I think it's accurate to say that those with crappy experiences in general are more likely to want their sight back. I mean, who wants to suffer needlessly? I too had an experience with a mobility instructor that I'll never forget. While it may not be as blatantly traumatizing as those mentioned above, it paralyzed me in its own way. I once had an instructor who insisted on using tactile maps to show me everything. She also had a habit of turning the map in order to supposedly show me how cardinal directions worked. This only frustrated me to no end. When I was out in the real world practicing routes, I would often freeze because I could not, and still can't to this day, understand cardinal directions beyond the fact that the sun rises in the east, so if I go out super early in the morning, and the sun is glaring in my face, which, incidentally, would be highly unpleasant due to my sensitivity to light, I'm facing that direction. The instructor in question literally gave up on me. She said I was unteachable, at least by her, to my face. She also said I have a learning disability because of my struggles. While I certainly don't have a problem with those who have learning disabilities, I was told by my mom, who was also present at that meeting, that I had brought shame to her by not trying hard enough and causing someone to think I had one. I was told to get tested, she wouldn't allow that to happen, no doubt because both of my parents have always been exceedingly paranoid that if any one of us looked bad, they would lose their jobs. That's beside the point, though.

There have been other instructors since then, and while I can now cross streets successfully without veering too much, I still struggle mightily with directions. This comes with a great deal of shame because of my past experience, not to mention that I've had a crippling fear of getting lost ever since I was little. Even being in a car with someone who doesn't know where they're going can send me into a full fledged panic attack.

So, would I take a chance to have sight, even though I've only had light and shadow perception since birth? You bet your ass I would. Anything to understand basic navigation, which seems to be something all humans get except me, would be wonderful. Driving would also be great. I was raised with people who are extremely independent. My parents never had much of a social life, and, in fact, once I became an adult, I was discouraged from having one myself. My dad always used to tell my sister that it was wrong for her to be close to those she worked with, because if something went wrong, her job could be in jeopardy. It was also strongly implied that once you were old enough to work, you didn't need friends. Since we live in a rural area, all the better to not be bothered by anyone, I didn't really get the chance to just do what I wanted regardless of what they said. So I'd take the oppurtunity to drive in a heartbeat, the instant I could safely do it.

There are so many other ways I could explain how a lack of sight held me back due to my unique situation, but I don't want to go there. I've already said way too much. However, this is a raw open wound, and had things worked out with my previous partner, I'd probably not be taking such a bitter tone, for various other reasons that have nothing to do with this topic. All I can say is that, while it certainly would be tough to adapt to living with a new sense, could it really be worse than some of the other hardships I've endured? Perhaps I'll never know. And, of course, it's different for everyone. Just because one person might not be able to cope doesn't mean that they're wrong for not wanting to take the plunge. Everyone's threshhold for tolerance to adversity is different.

The glass is neither half empty nor half full. It's just holding half the amount it can potentially hold.